I am the Social Worker for twin 9 year old boys with Duchenne’s MD. I am trying to help their mother and am looking for a way of explaining to the boys their condition. They have learning disabilities. The local hospice who I thought would support with this type of thing have declined my referral saying they are not medically unwell enough yet.
Would anybody in your community already have a Social Story, or something in Easy Read version which other parents have used in the past please?
This would be very much appreciated.
Many thanks, Tracey