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Duchenne Dashboard

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  • April 12, 2012 at 10:10 am #74353
    Duchenne Dashboard

    I just quickly read an article about this – is/has MDC signed up to this? The purpose of this agreement is, I think, to ensure research is more co-ordinated etc.

    Lesley
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    April 12, 2012 at 11:02 am #85241
    Re: Duchenne Dashboard

    https://www.duchennedashboard.org/

    I could not find out much about this ‘org’, it is aimed at researchers, rather than individuals, I could not see if it was worldwide or just continent based.

    I'm always the animal, my body's the cage

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    AM
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    April 12, 2012 at 12:50 pm #85242
    Re: Duchenne Dashboard

    This is what it says at the beginning – I just wondered if MDC are part of the Duchenne Alliance?

    The Duchenne Alliance, a group of nearly 40 international independent foundations focused on Duchenne Muscular Dystrophy, has taken a groundbreaking step toward winning what it calls “the ultimate race against time.”

    The leaders of Duchenne non-profit organizations agreed at a meeting on March 11 2012 on the mass implementation of the DUCHENNE DASHBOARD, an innovative research grant management system that will facilitate an unprecedented level of collaboration among the many foundations, patient advocacy groups, and scientists dedicated to finding treatments and cures for Duchenne.

    Lesley
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