Hi! I am in the early stages of being investigated further for Desmin. I have found out that my birth parent has it and has been diagnosed. There seems very limited information online and would like to be pointed in the right direction if anyone has any useful links or more knowledge than I do please.
Please do consider that if you are unsure about anything in them to contact your GP, specialist or give a shout out to us on the forum especially if you are not familiar with medical matters.
Please do consider that if you are unsure about anything in them to contact your GP, specialist or give a shout out to us on the forum especially if you are not familiar with medical matters.
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