Charity Drive and Awareness Event 2013

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  • #74287
    Charity Drive and Awareness Event 2013

    My name is Craig Walter and I have been suffering from Duchenne Muscular Dystrophy since birth. I currently have a tracheotomy and require 24 hour ventilation, but this does not prevent from lead a full and fulfilling life. Since leaving university I have been unable to get a suitable job due to my illness, so I have decided to give something back to society by others means.

    I am going to embark on a fund-raising drive with two carers to raise money for Martin House Children’s Hospice and MD campaign in 2013. I am planning to visit 4 points around the UK which are John O’Groats, Aberystwyth, Lands End and Great Yarmouth. This is not only a fund-raising drive, but I also intend to end the trip at 10 Downing Street and explain how care for Muscular Dystrophy varies depending upon where you live. I want to tell the prime minister that this is both unfair and unacceptable.

    I would like to collect stories from people suffering with Muscular Dystrophy and there families regarding the lives people with MD lead and the quality of care they receive in their local area. I will give the stories to the Prime Minister along with statistical informatin to prove the need for specialist centres for MD. As an extra personal challenge I intend to drive my wheelchair the equivalent distance of a half marathon during the ten days of my fund-raising drive.

    You can contact me at craigwalter@myjkl.com

    Thanks Craig

    craigwalter83
    Participant
    Posts: 6
    Joined: 01/03/2012
    #84718
    Re: Charity Drive and Awareness Event 2013

    Wow, this sounds like a brilliant endeavour you’re planning! We will help spread the word here and promote wherever else we can. Good Luck!!

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
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    #84719
    Re: Charity Drive and Awareness Event 2013

    Welcome to the Forum Craig….

    and a big “Well Done” from all of us for highlighting an important issue.

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
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    Joined: 27/09/2010
    #84720
    Re: Charity Drive and Awareness Event 2013

    Laura – As your post brought up an area we have not discussed on the forum before, I have made it into its own thread.

    Advice to a healthy brother

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
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