Home > Topics > Muscular Dystrophy UK – General discussion boards > Help and advice

Adaptations Q&A 27.1.2016 12:00-1:30pm

Viewing 11 posts - 21 through 31 (of 31 total)
1 2
  • January 27, 2016 at 12:28 pm #121020
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Also my latest laptop does not have CD drive, so the CD method
    is not for all people these days.

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    January 27, 2016 at 12:35 pm #121022
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    I have never seen one or if I did it was a long time ago. Is it divided into sections?

    Off the top of my head I think flooring and shower types are very important. I have had trouble with mine so advice on what is safe and useable would have helped when the house house was being built.

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    January 27, 2016 at 12:47 pm #121023
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Thanks for feedback sar78. Yes the manual is divided into sections. The new version will not provide information on specific equipment items, but there is potential to have an online forum to ask questions about equipment and to share advice with others.

    Does anyone have any more general comments or questions on adaptations?

    Muscular Dystrophy UK staff member

    Alexa Follen
    Keymaster
    Posts: 32
    Joined: 12/05/2015
    January 27, 2016 at 12:56 pm #121026
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Is anyone currently having their home adapted? It would be great to hear your experiences.

    Muscular Dystrophy UK staff member

    Alexa Follen
    Keymaster
    Posts: 32
    Joined: 12/05/2015
    January 27, 2016 at 1:01 pm #121028
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Sharing experience and getting input from others would be superb.

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    January 27, 2016 at 1:06 pm #121029
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Thanks taungfox.
    Does anyone have any specific questions about adaptations?

    Muscular Dystrophy UK staff member

    Alexa Follen
    Keymaster
    Posts: 32
    Joined: 12/05/2015
    January 27, 2016 at 1:18 pm #121032
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    I have an observation…

    It seems there dan be quite a difference depending on where you live as to how joined up the various services are. For example, OT, Social Services, Housing departments and the Wheelchair service.

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    January 27, 2016 at 1:21 pm #121033
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Thanks your answers!

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    January 27, 2016 at 1:22 pm #121034
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Yes I agree sar78. There can be variations across the regions with how services work. There will be some guidance in our new manual on how to be your own keyworker and to help good communication between all services involved when going through an adaptations process.

    Muscular Dystrophy UK staff member

    Alexa Follen
    Keymaster
    Posts: 32
    Joined: 12/05/2015
    January 27, 2016 at 1:30 pm #121038
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Thanks for all your comments. This Q&A has now ended. If you have any further queries or comments you can contact us via our helpline on: 0800 652 6352 or via email: info@musculardystrophyuk.org. Or you can contact Demelza directly on 07801047977 or by email: d.stuart@musculardystrophyuk.org.

    Muscular Dystrophy UK staff member

    Alexa Follen
    Keymaster
    Posts: 32
    Joined: 12/05/2015
    January 29, 2016 at 12:38 am #121082
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Hiya, have you tried the Closomat Aerolet toilet lift or the Lift Seat?
    The latter is much cheaper than the former though. Both tip you forwards slightly but not enough to slide out of it in my experience. I think both companies would be happy to bring their kit for a demo in your home before you decide to buy!
    Hope this helps….

    tea_gone_cold
    Participant
    Posts: 2
    Joined: 21/08/2015
Viewing 11 posts - 21 through 31 (of 31 total)
1 2

You must be logged in to reply to this topic.

Keep in touch