Viewing 20 posts - 1 through 20 (of 31 total)
  • #120785
    Adaptations Q&A 27.1.2016 12:00-1:30pm

    Please join us in this thread on Wednesday January 27th from 12:00-1:30pm for a Q&A about adaptations and adjustments.

    Our expert in the field, Demelza Stuart, who serves as our Advocacy and Information Officer and Occupational Therapist in Northern Ireland will be hosting the Q&A and will use your questions, thoughts and input when updating our current Adaptations Manual.

    We would love to hear from anyone who has used the manual in the past, or from anyone who has thoughts to share and questions to ask about the adaptations process.

    We look forward to the discussion.

    Muscular Dystrophy UK staff member

    Alexa Follen
    Keymaster
    Posts: 32
    Joined: 12/05/2015
    #120812
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    :yes:

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #120815
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Oooohhhh.

    Very interesting!

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    #120816
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    This is great. Thanks for posting!

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #120828
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    thanks will do

    Cat
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #120954
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Sadly I cannot be here tomorrow but here is my question.

    Is there a toilet seat riser that can elevate a person up to standing height [whilst feet are on the floor and not tipping the person forward] that can work in a wet room?

    I'm always the animal, my body's the cage

    I blog about nothingness www.amgroves.com

    AM
    Participant
    Posts: 4,751
    Joined: 05/03/2015
    #120975
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    I cant be on either.

    I am looking for a transfer board with a loo shaped end (half moon curve) with a groove that would stop board moving as I shuffle.. does such a thing exist.

    Cat
    Moderator
    Posts: 1,002
    Joined: 20/09/2010
    #121007
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Welcome to the Q&A on adaptations.

    Demelza Stuart, our Occupational Therapist is currently in the process of updating our Adaptations Manual. We would like to know if any of you have used the adaptations manual in the past? If so, can you tell us what was helpful about having the manual? Was it easy to understand?

    We would also like you to give recommendations for what information would be useful to have in any future publication to help you through the adaptations process?

    Please feel free to share your thoughts and experiences on adaptations here.

    Muscular Dystrophy UK staff member

    Alexa Follen
    Keymaster
    Posts: 32
    Joined: 12/05/2015
    #121008
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Hi!

    Is this the place to ask questions?

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    #121009
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Hi everyone. Welcome to the discussion. :welcome:
    The aim of today’s Q&A is to get your feedback on our Adaptations Manual. This publication aims to provide advice to both health professionals and individuals going through the adaptations process.
    So, has anyone used the adaptations manual in the past?

    Muscular Dystrophy UK staff member

    Alexa Follen
    Keymaster
    Posts: 32
    Joined: 12/05/2015
    #121010
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Hi taungfox. Yes you can ask questions here, and discuss your experiences of going through an adaptations process to your home. As Emilie said above, we may not be able to answer individual queries during the Q&A, but we will be happy to hear your question.

    Muscular Dystrophy UK staff member

    Alexa Follen
    Keymaster
    Posts: 32
    Joined: 12/05/2015
    #121011
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    I am rather confused by the fact that Zero Rating of Adaptations
    is not very well publicised.

    I did not know about it till the O.T. lady mentioned it in connection
    with the special “purpose built mobility scooter store” that I was having
    made for my mobility scooter.

    Strangely the company building it did not know anything about it and were most
    suspicious. It took the intervention of one of our MD ladies to
    advise than and come up with the relevant paperwork.

    As this was a specific adaptation for a durability issue there should have been no doubt at all!

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    #121012
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    I was given the adaptations manual at a regional conference in
    2010. It was even on a CD.

    Question. Has it been added to or changed since 2010?

    It had lots of very useful advice.

    Loved the templates to calculate “door swings” and “turning circles”
    when panning adaptations to your home. They were basic overlays though.
    Has anymore work been done on this?

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    #121013
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Thanks for raising this. If you’re disabled, you should not be charged VAT on products designed or adapted for your own personal or domestic use. Also, you should not be charged VAT on:
    • the installation and any extra work needed as part of this
    • repairs or maintenance
    • spare parts or accessories
    The product and your disability have to qualify.
    Find more information here: https://www.gov.uk/financial-help-disabled/vat-relief

    Muscular Dystrophy UK staff member

    Alexa Follen
    Keymaster
    Posts: 32
    Joined: 12/05/2015
    #121014
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    The adaptations manual is currently in the process of being updated. The new version should be available by summer time. Good to know the templates were useful. Did you like the fact the manual was available as a CD? Would it also be helpful to have all the content available to download from MDUK website?

    Muscular Dystrophy UK staff member

    Alexa Follen
    Keymaster
    Posts: 32
    Joined: 12/05/2015
    #121015
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    I for one would like it to be downloadable.

    I have also noticed that awareness of VAT exemption has dwindled across the board.

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #121016
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Yes. Download sounds superb.

    Then you would get all the additions and updates.

    "Even if you are not paranoid, it does not mean they are not out to get you!".

    taungfox
    Participant
    Posts: 4,630
    Joined: 27/09/2010
    #121017
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    One reason is that my new laptop hasn’t got a disc drive! It would also mean that those with tablets or who primarily use their mobiles to find information would be able to access the manual.

    A learning experience is one of those things that say, “You know that thing you just did? Don’t do that.” - Douglas Adams

    sar78 sar78
    Moderator
    Posts: 2,246
    Joined: 05/03/2015
    #121018
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    Great. We are hoping to have an online version of the manual, which will be much easier to keep up to date.
    Does anyone have any feedback on the content of the manual?
    Is anything missing? We will certainly include details of VAT exemption and how to claim this in the new version.
    What information would have been useful for you when having adaptations to your home??

    Muscular Dystrophy UK staff member

    Alexa Follen
    Keymaster
    Posts: 32
    Joined: 12/05/2015
    #121019
    Reply To: Adaptations Q&A 27.1.2016 12:00-1:30pm

    When agreeing adaptations needed to your home, did you have an input into the plans or were you mostly guided by your OT?

    Muscular Dystrophy UK staff member

    Alexa Follen
    Keymaster
    Posts: 32
    Joined: 12/05/2015
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