Weird Symptom

That is curious. I personally have not had such happening, my abdomen has ‘shifted’ because of the extreme curvature of my spine, plus I wear an elasticated brace which holds things in.

True so true.

I too have noticed my portion size has decreased yet my waist has spread. Some of my skirts are getting a bit tight

Eating makes me uncomfortable and I arrange eating around my day which isn’t ideal as not eating makes me flag earlier. It is a vicious circle although like catatude I use the ventilator after meals to combat the breathlessness. I have also noticed my heart rate increases after I have had a meal.

In the past I have tried various things to put on weight e.g. build-up drinks, full fat milk, fortifying mix, cheese sauce on veg etc. Anything to increase calories but it didn’t make much difference and it got me to the point where I couldn’t even look at a build-up carton!

I have always had a healthy appetite and still do, also drink quite alot of beer and now that i am moving about so much less this is a situation that can’t go on! I know i should be eating and drinking beer alot less but then i think, “this is the only pleasure i have left” and put it off, i am only a 36/38″ waist but this might change soon enough if i don’t show some restraint.
I feel foolish posting this when so many of you guys are unable to manage to work up an appetite and i hope you will forgive me as i am not trying to rub it in. I hope that by writing this i can convince myself to show restraint and do the right thing. Best wishes to all my Talk MD pals.

Sorry to hear about your hospital stay. It is true most medics associate MD as just Duchenne and thus fall into the wrong conclusion only appears in boys [even though there are very rare instances of girls with DM].

When I read your symptoms, I first wondered if it was anything kidney wise, but I assume the scans ruled out infection, grit or stones, same with the gall bladder.

I hope the pain subsides soon, it is annoying and uncomfortable when an area of our body decides to stretch, hurt or burn as my shoulders, arms and hips seem to want to do recently.

If its gall stones the pain is awful. I get my pain in the early hours of the morning, it occurs all down my right side both at the back and front right side. It doesn’t matter what you do, sitting up, laying down, rocking etc nothing helps, I can only shift it by taking Co-Dydramol.

How are you now are you still in pain?

GP gave me solpadol and omeprazil and one of them seems to be making me really sleepy, possibly to strong for my body weight and the fact that i hardly eat this week or last.

pains a constant burny niggle this morning. seems to get worse after I eat.

ohh and my wees went a bit strange its gone all stop start stop start with a weird pulling sensation, do you think this is someting to do with the catheter they put in last week or is this a kidney stone thing.

thanks guys for letting me have a moan.

my weird sympton cont…

when I was ill at the beggining of the month I had a iv drip in my hand during my not so lovely stay in hospital.

thing is my hand swelled up with the Iv and now I have a hard lump just beside the wee bone that sticks out on my wrist.

does this normally happen and will it go away. the bruising and puffyness has gone down put it hurts around about the lump when I write, zip up a coat or use the mouse.

I have heard of people getting a localised infection from IV’s. Hopefully it is just the related bruising. Have you had many IV’s before and if so has it happened before?

My arms are terrible, when I have a blood test my arms bruises terribly and I look like a junkie gone mad, but I have absolutely no problem at all if the blood is taken from the back of my hand.

It can also depend on the efficiency and skill of the person who put the needle in.