Rare Disease Patient Survey – Please help!

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    Rare Disease Patient Survey – Please help!

    Hi everyone,

    I am working on behalf of the Cambridge Rare Disease Network, who are looking to implement a home-visiting nursing support service to patients affected by rare diseases, initially in the Cambridge area, but with a view to expand nation-wide.

    We have put together a short survey and are looking for as many responses as possible from patients affected by rare diseases (or carers who look after individuals with rare diseases). We’re looking to analyse the responses within the next two weeks, so time is of the essence.

    The survey is very short, and can be reached at http://goo.gl/forms/kVUzD8I8Vh

    Many thanks for your time and consideration.

    Kind regards,
    Joshua Maher

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    Joined: 12/01/2016
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