January 12, 2023 at 10:31 pm #202779rant
So if you are told your diagnosis may take a year and you are recommended to have oxygen at night to relive breathing during the day as your so breathless after it taking 2 years to see a neurologist can you try and claim pip as your struggling to do your workRoseis50ParticipantPosts: 0Joined: 12/01/2023January 13, 2023 at 12:44 pm #202780Reply To: rant
Well I might suggest that it costs nothing to try. You have evidence, or could get evidence, from a medical professional who has told you to use oxygen at night, and you will also have evidence to show that you are struggling to breathe during the day.
Get hold of the claim form and look through the questions and start gathering evidence. Please do come back if you need more help, and perhaps local disability services for help too. I did and they were amazing, as a lot depends on what words you use for the answers.
So many love songs, so little love.embayweatherModeratorPosts: 8Joined: 02/11/2015January 14, 2023 at 7:54 pm #202781Reply To: rant
Are you seeing a respiratory consultant?
Are you using bipap breathing support? It is not recommended that MD people have supplementary oxygen alone as our chest muscles are weak and cant always expel the Co2. Adding oxygen if retaining Co2 can make MD poorly. Do you have a pulse ox monitor o measure co2? They can be bought for £20 online.
Are you seeing a respiratory consultant?
Please join breath with MD on Facebook for more information on this.CatModeratorPosts: 1,002Joined: 20/09/2010February 28, 2023 at 12:23 am #202806Reply To: rant
I was told to see a neurologist would take 1.5 year wait.
I called bupa and for £150 i got to see a neurologist within 1 week of calling.
Turns out it was same one inwhich on nhs would take 1.5 years to wait.
Works for nhs 2 days a week and private 3 days. I found out nearly all specialist do this.
Amazing they value life’s at £150
He then progressed referral for testing via nhs route after seeing me.
So if you can afford £150 call bupa to see private neurologist who will probably be same nhs one you would see anyway in 2 yearsTomtom01ParticipantPosts: 0Joined: 27/02/2023February 28, 2023 at 12:57 pm #202809Reply To: rant
A sad fact of medical life and one which I doubt will go away. I do believe you did the right thing though. I wonder why such a long wait for what is a very important decision, and whether or not other neural conditions have the same delay.
So many love songs, so little love.embayweatherModeratorPosts: 8Joined: 02/11/2015March 1, 2023 at 10:58 am #202810Reply To: rant
I don’t think it is placing a value of £150 on a life as such. BUPA is a private Healthcare provider and charges this private consultation fee to anyone who has a referral and is willing to pay for a private consultation or has private medical insurance. Many Consultants from many medical disciplines work and have lists for both the NHS and private healthcare providers and this is not new. Waiting lists for NHS treatment are often in excess of the targets set, for example an appointment for first consultation with a Neurologist can take up to anything from 12 weeks right up to 42 weeks and often much longer, it just depends which health authority you are under and the appointment is in. You should absolutely claim PiP as it is not dependant upon a specific condition or the medication you take, PiP looks at the level of help you need because of how your condition affects you (in theory anyway). Also don’t forget your employer must make reasonable adjustments for you at work as per the Equality Act 2010. You can also get help at work via Access to Work, which can help both you and your employer. Finally your GP is the healthcare professional who is responsible for your primary care and should support you and ensure your respiratory care is monitored and ensure any interventions that might be required if your situation becomes worse or has additional complications. Hope your situation improves soon.tjonlineParticipantPosts: 0Joined: 27/10/2022March 1, 2023 at 11:26 pm #202814Reply To: rant
But that’s exactly the issue, if you can phone and book privately with a week then they are not backlogged like the NHS as can get a appointment in 1 week.
NHS is literally years to see the same specialist.
It’s a con and medical care is totally profit driven, GP practices are all privately owned with the GPs usually operating as self employed or limited company (now illegal as working outside or IR35) and practices are ran as a business with profit a priority over health care.
GP practices have been paid extra to keep referral rates down to hospitals and if they meet there target they get bonuses. This is fact
GP practices are being paid to help local NHS groups limit the number of patient referrals and cut costs, the doctors’ magazine Pulse found.
Appointments affected include scans and consultations with specialists – including those for cancer patients.
So you literally have to fight to get referred but they will call and message you everyday to get a flu or vaccine shot as they also get paid by government for each shot given.
They pretend to care but really only care about money and profitTomtom01ParticipantPosts: 0Joined: 27/02/2023
You must be logged in to reply to this topic.