rant

Well I might suggest that it costs nothing to try. You have evidence, or could get evidence, from a medical professional who has told you to use oxygen at night, and you will also have evidence to show that you are struggling to breathe during the day.
Get hold of the claim form and look through the questions and start gathering evidence. Please do come back if you need more help, and perhaps local disability services for help too. I did and they were amazing, as a lot depends on what words you use for the answers.

Mike

I was told to see a neurologist would take 1.5 year wait.

I called bupa and for £150 i got to see a neurologist within 1 week of calling.

Turns out it was same one inwhich on nhs would take 1.5 years to wait.

Works for nhs 2 days a week and private 3 days. I found out nearly all specialist do this.

Amazing they value life’s at £150

He then progressed referral for testing via nhs route after seeing me.

So if you can afford £150 call bupa to see private neurologist who will probably be same nhs one you would see anyway in 2 years

I don’t think it is placing a value of £150 on a life as such. BUPA is a private Healthcare provider and charges this private consultation fee to anyone who has a referral and is willing to pay for a private consultation or has private medical insurance. Many Consultants from many medical disciplines work and have lists for both the NHS and private healthcare providers and this is not new. Waiting lists for NHS treatment are often in excess of the targets set, for example an appointment for first consultation with a Neurologist can take up to anything from 12 weeks right up to 42 weeks and often much longer, it just depends which health authority you are under and the appointment is in. You should absolutely claim PiP as it is not dependant upon a specific condition or the medication you take, PiP looks at the level of help you need because of how your condition affects you (in theory anyway). Also don’t forget your employer must make reasonable adjustments for you at work as per the Equality Act 2010. You can also get help at work via Access to Work, which can help both you and your employer. Finally your GP is the healthcare professional who is responsible for your primary care and should support you and ensure your respiratory care is monitored and ensure any interventions that might be required if your situation becomes worse or has additional complications. Hope your situation improves soon.