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  • #202339
    New diagnosis

    Hi I am mark croft I have had unknown muscle disability. Good news got diagnosed with jag2 mutilation in my genes very rare n very new gene

    :new:

    Markcroft75_jag2
    Participant
    Posts: 0
    Joined: 30/11/2021
    #202340
    Reply To: New diagnosis

    Hello and welcome Mark. It is indeed a rare form of MD. It would be great if you could indicate how it is affecting you as there seems to be little of that sort of information around.

    Mike

    So many love songs, so little love.

    embayweather embayweather
    Moderator
    Posts: 8
    Joined: 02/11/2015
    #202389
    Reply To: New diagnosis

    Hi I admin the Muscular Dystrophy Support Group on Facebook, for those in the UK & Ireland affected by all types of Muscular Dystrophy. If you’re on Facebook you’d be more than welcome to join us x

    https://www.facebook.com/groups/3384836634865707/?ref=share

    KatR
    Participant
    Posts: 0
    Joined: 04/07/2019
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