Reply To: Manifesting Carrier of Beckers MD
Hello and welcome. This is indeed a very difficult situation for you, and one that seems under explored. I too was told I was a carrier (with FHSD), yet now, a few decades later I have body wide pain, difficulty breathing and walking, and many of the other usual symptoms. The point of this description is to say that you need to, somehow, get a proper diagnosis as there seems to be so much uncertainly here.Joe’s comments above are absolutely correct, and you must push for them until you get what you need. In the meantime you should visit a physiotherapist, preferably a specialist in neuro muscular conditions , and tey can help you deal with the difficulties you are describing. Meantime, try looking up support groups like https://en-gb.facebook.com/BeckerMuscularDystrophyAwarenessWeek/, and remember you are not alone. Many on the forum can help you get through this, and indeed the wonderful people at MDUK have lots of support people who can give you further advice.
We are here to help, so anything you may want help with, or if you want to rant, or simply discuss with others, we are here.
Do please keep us informed as to progress.
Mike
So many love songs, so little love.