Joint Pain

Thank you all for your thoughts. I have two attacks of the rash, which is currently undiagnosed, the second attack late last year and into this, began a long tern illness. Fatigue, flu like symptoms, blood sugar out of control, short of breath the list goes on. I was referred 18 months ago for investigation of the rash which the ‘specialists’ believe is scabies despite not showing the correct symptoms and treating it several times. I began on a ventilator during this time as breathing was, and is, much worse and is getting worse, despite using the machine. I use it twelve hours a day but I still awake very tired. I will be speaking to my ventilation physios about that when I get back from my ‘normal physio on Thursday. I have no discoverable evidence of arthritic or rheumatic changes. My best guess is now fibromyalgia, which fits most of the symptoms I have. I will discuss it with the doc when I can get an appointment in a couple of weeks and let you know.

Mike

Thank you so much for your kindness Cat. I have not long been back from physio a long way away, so hence the delay. Sadly the pain is worsening, but I do try to keep optimistic. at least I can sleep. The irony is that I managed to get the muscle pain under control, then this lot kicked in. I must have been really bad in a previous life!

Mike

Joe thak you for your thoughts. My blood sugar is through the roof, and consequently cant stop drinking. Not really my thing. Almost done with the treatment now so when its done it is done. I have another major concern too that I might one day get a repeat perforated bowel. Just about survived the last one, the next I doubt I will. Thus another reason not to use prednisolone. Of course of the other side of the coin it has made some difference. The pain is still there but I can move a little more freely, rather like early days with FHSD pain.
Diggers, I also appreciate your thought on doctors. Medical staff do often say things like tha simply to remind patients that they have a serious condition. Just think about how we manage MD. WE are almost encouraged to try and forget it and carry on as best we can, so we do. Needless to say we are noticing what we have each day, each minute even, but we put it to the back of our minds, and thus may not take it with the seriousness it deserves sometimes. So much easier to remember in acute problems like when you have a broken leg, but with MD which you may well have had for some years, it becomes our norm. Thankfully I suspect most of us know a lot about our own conditions and can make good choices about life.
With that in mind I would offer my own GP view. When I go, as I did recently , because they know nothing about MD and they also know I have been in the trade, I usually get “What do you thin we should do here?”. It does help for me at least. Especially as they listen too me as well.

Mike

A number of years ago my bowel split creating, I believe, a 6cm hole. You will appreciate that we all have our fair share of pain with MD but this pain was beyond comprehension for me. After taking a huge risk and going to hospital in a nearby town i was operated on and got better. However, it was very close, with my temperature rising I was close to my organs shutting down. Since then nothing suspicious was to go inside me, no aspirin, no ibuprofen, not even curries, lest it happen again. But thats life. On the whole I eat very. little, and what I do eat is very bland as I am not really interested in food or eating. Beginning to have episodes of IBS now, not certain why, but it comes and goes so I can deal with it for the most part.
SO be careful now with what goes inside. I am sure you have been told that ad nauseam, but it will help.

Mike