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DMD in school

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  • March 22, 2021 at 5:55 pm #193351
    DMD in school

    Hello,
    I am new to this site and I currently teach a student with DMD. He is great and in his teenage years. I am looking for some advice and insight on how people felt during their teenage years and managing school life. We are a typical teenage, starting to fancy people and making it known, exploring our own body etc. I treat him like any other student socially. I am open and honest about feelings and we generally have a laugh every day.

    Is there anything that your teachers did and you were grateful for it?
    Is there anything that they did and you wish they had not?

    Thank you!
    Hope everyone is keeping safe and well.

    adamorrobel
    Participant
    Posts: 0
    Joined: 22/03/2021
    March 22, 2021 at 8:55 pm #193353
    Reply To: DMD in school

    Hey,
    I’d be happy to talk more about this with you. I’m CEO of Pathfinders Neuromuscular Alliance and we support teenagers and adults with DMD. I’m 40, living with DMD myself
    I’d suggest you look up Janet Hoskin’s book on transition
    I’m co-writing a book with Duchenne UK for parents of adolescents too. It won’t be out for a little while but I would be happy to share some thoughts with you
    Jon

    jonreyhastie
    Participant
    Posts: 0
    Joined: 22/03/2021
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