Reply To: Hello Talk MD.
So let me ask you a question in reply. Do you see a physio regularly? I am sure you will have heard about if you do not use something then in the end it will stop working. A number of times a day I walk up the garden, and I do mean up. This gives me lots of pain over and above the ‘normal’ pain I have, to ensure that I will have use of my leg muscles as long as possible (I have FHSD). My physios always remind my to do these things, even though I could use a scooter if needs be, or even stop going there. It is possible that you have the view about losing mobility more quickly, because you have or because you are using your power chair or other support.
Briefly though talk to your physio, and if you do not have one get one it will change your life!
Mike
So many love songs, so little love.