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Hello?
Serious question here. Where is everybody?
Reply To: Hello?Do you mean that there is not a lot of folk on here despite the thousands who have MD?
Mike
So many love songs, so little love.
Reply To: Hello?Well Mike, there used to be quite a few posters on here on a daily basis, chatting and stuff. I just wondered why there are so many posts unanswered for months or years, and virtually nobody on to chat. I take it there is a closed group over on Mr Zuckerberg’s site?
Reply To: Hello?HI Ranald,
While there is the MDUK Trailblazers for younger people for campaigning over on Facebook. There’s no other MDUK Talkmd forum on facebook. Although there is many very good MD condition specific groups all be it with less privacy or anonymity to post as our Forum username based set up.
As you say it has been very quiet but we do hope with the potential relaunch of Talkmd forum in 2020 that it will attract back more contributors. I know lots of people read our posts and hopefully now that we have both new and seasoned members popping in it will grow to how the forum once was.
Please keep posting and chatting, us mods try to pop in as often as we can to answer and support. Forums like this one thrive best with input and benefit from everyone’s personal knowledge and experiences.
Reply To: Hello?You are quite correct about frequent posting generating more interest, Cat, I have found that to be the case elsewhere. I certainly hope that new members will soon be giving us the benefit of their experiences, and asking any questions they may have.
Reply To: Hello?Serious question here. Where is everybody?
Good point……. Where is everyone?
Not sure where I am!
"Even if you are not paranoid, it does not mean they are not out to get you!".
Reply To: Hello?I wonder if some analysis is worth doing on why people come to this site, and indeed why they do not.I know a number shy away from such groups as this as they don’t want to talk about their condition. I include my sone in this as well as others I have spoken too. Perhaps, also, the relatively small number of folk with MD compared to other conditions will reduce numbers.
For me I am happy to chat all day long if I can help.Mike
So many love songs, so little love.
Reply To: Hello?How’s it going Mr Fox? long time no see! I have no idea why I have looked in on this site again, except that perhaps that pavement headbutt a couple of weeks ago knocked some sense into me!
Reply To: Hello?I wonder if some analysis is worth doing on why people come to this site, and indeed why they do not.I know a number shy away from such groups as this as they don’t want to talk about their condition. I include my sone in this as well as others I have spoken too. Perhaps, also, the relatively small number of folk with MD compared to other conditions will reduce numbers.
For me I am happy to chat all day long if I can help.Mike
I wonder whether groups like this end up being single-issue; so people tend to ask questions around changes they’re going through (initial diagnosis, or applying for PIP etc), but once those changes are progressed through, there’s little for them to return to. That’s not necessarily a bad thing, but it might be why the forums are a little sparse outside of the initial introduction or question posts.
Reply To: Hello?I was perhaps thinking along the lines of loneliness and social isolation. I seem to remember this site as having a more community feel to it. I can’t be the only one who has nobody to talk to!
Reply To: Hello?Hello I will be a regular I’m afraid… I was advised by my care team in Nottinghamshire to join this group , and thought it’s not very often the specialist tells you to look on the internet!
New to all this is changing my life so reading all the previous posts are interesting and I’m sure I will get questions soon 🤷♀️I would definitely be interested in meeting people when the next meet up takes place, and hope I have my diagnosis by then .
Take care people, Tracy 😊
Reply To: Hello?Glad to meet you Tracy, I hope to chat with you soon!
Reply To: Hello?A good thought there Jono. Sadly we all need support along the line as so many single issues come along, and, of course, they miss the opportunity to help others with their experience.
Mike
So many love songs, so little love.
Reply To: Hello?It would be so good if you can become a regular as there will be so much you can offer to others as your journey progresses.
Mike
So many love songs, so little love.
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