Reply To: Bmd help
Hello and welcome. Firstly may I say that I am glad that you have come here and are thus beginning to deal with the problem head on. It took me many years to come to terms with my FHSD, and it was so much harder for me than my son. But your comment about not knowing the future scaring you, none of us know our future, but I see that you are adapting and getting into motocross. Life for those of us with MD is about adapting, but it is like that for those who do not have it. For me it took away my career of over thirty years, then another career of twenty, and now, well I am retired of course but I am also a qualified drone pilot. Like you I have adapted. I can sit down to fly! When I can no longer get out to fly, then I have something else lined up for me. Like you adapting to my changing circumstances. I have also stopped using the term “MD Sufferer”. I have MD and yes I suffer with pain. I try not to let it control my life, I want my life to control the MD.
I see that you are also looking at the positives. Not hanging around but getting out there, getting a career and a “beautiful girlfriend” too. You may think she doesn’t deserve it, but she may not deserve being cut out of a significant part of your life. I rapidly found out who my friends were when I started showing symptoms. My wife was there by my side through thick and thin, and now also helps raise money for MD. She has been with you for seven years, by now I think you must know she is committed to you MD or not. Let in, let her help, let her understand, let her share. Then perhaps your future will not be as scary.
Mike
So many love songs, so little love.